Raising awareness and advancing conditions for care for people living with severe epilepsy and intellectual disability.
60,000 people in the Nordics live with epilepsy and some degree of intellectual disability
ABOUT THE INITIATIVE
Eir Nordic is a Nordic collaboration that brings
together people and organisations providing care
and support for for people living with epilepsy and
intellectual disability.
Our mission is to improve knowledge levels, share
stories of good care and elevate successful, local
initiatives to regional best practice.
We do this by reconizing those who go above and
beyond to care in two categories – individual Role
models and systemic Change-makers.
People living with epilepsy and intellectual
disabilities are an underserved population
that deserves better care.
According to Norse Mythology, Eir is the goddess of healing.
Eir directly translates into mercy, protection and support.
OUR PARTNERS
Eir Nordic is founded by Patient Associations across the region and by Jazz Pharmaceuticals. Financial support for the initiative is provided by Jazz Pharmaceuticals.
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CATEGORIES OF RECOGNITION
We welcome submissions for activities by the individuals themselves or by someone else on their behalf, and we recognize excellence of care in two categories:
ROLE MODELS
CHANGE-MAKERS
individuals who defy expectations
and with empathy and determination
bring health and hope to this
underserved population. This can
be a family member, a primary carer,
a physician or any other person
involved in the continuum of care.
systemic and scalable change efforts
designed to improve quality of life
for this group of patients. Activities
can range from raising awareness to
improving diagnosis, ensuring equal
access to healthcare, managing the
disease of improving conditions for
patients, and can come from public
or private sector.
A panel representing Nordic epilepsy patient associations and clinical expertise will assess all submissions using four criteria:
Relevance to the cause
Commitment and passion
Demonstrated positive change
Scalability
Submissions will be accepted until 30.04.2025
NORDIC EDUCATIONAL & BEST PRACTICE SHARING DAY
Submissions selected by the panel will be invited to an educational & best practice sharing day with dedicated networking activities to discuss local successful initiatives and approaches to care. Here activities are highlighted and recognised for their contribution to the cause. Chosen submissions are announced and presented on the Eir Nordic website.
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Who is behind Eir Nordic?Eir Nordic is an initiative started by 5 epilepsy patient associations across the Nordics and Jazz Pharmaceuticals.
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Who will be assessing the submissions and deciding on who to recognize?Assessment Panel consists of members from each Nordic country. There are representatives from each patient association involved, two clinical experts and one other member. Jazz Pharmaceuticals does not have a member in the panel but ensures that recognized initiatives are not meeting any exclusion criteria.
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Are there any specific criteria for submissions?The criteria are: Relevance to cause, Demonstrated positive change, Scalability, Commitment and passion. As applications are likely to be diverse, the evaluation criteria are deliberately left open for interpretation and assessment of the panel members. Exclusion criteria are: Area of focus (outside the space of epilepsy and intellectual disability), Promotion of products or services from private companies and Location (outside the Nordics).
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What do the presented initiatives receive?The selected initiatives by the panel are invited to join in a best practice sharing and educational day hosted by Jazz Pharmaceuticals.
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Is there a monetary reward?No. The selected initiatives by the panel are invited to join in a best practice sharing and educational day hosted by Jazz Pharmaceuticals.
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Who is invited to the Best-practice sharing and educational day?The panel selected initiatives are invited as speakers. The day is open for all with a vested interest in improving the care for people living with epilepsy and intellectual disabilities.
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Can I participate in the Best-practice sharing and educational day even if I am not submitting an initiative and/or being recognized?Yes.
